Saturday 31 August 2013

Catch up.... it's been a while!

I am back, its only been five months! I cant believe how much has happened, Lottie turned two, thankfully not a terrible two, Frankie is due to have another dose of botox any time soon, both my babies have started nursery, i have started my driving lessons; better late that never, we have a new car; my back is thankful for this, Frankies car seat finally arrived, we are having a baby; another little girl and last of all we moved house, back to Spalding, into a house that holds many special memories of mine.
Busy busy busy! 
  Lottie has shot up and is now talking in sentences, i sometimes forget she is only two. Time really flies when you have children. Lottie has continued to be an amazing little sister to Frankie and i cant believe how much she wants to help and care for Frankie, he is always top of her priorities and i couldn't ask for anymore from her.
  Frankie continues to go from strength to strength, he has changed so much this last six months, he's gone from my baby to a little boy, his sight and hearing has improved significantly and its been amazing, its so lovely to see him turn his head towards the door when his daddy gets home and to get some enjoyment out of the programmes Lottie makes him watch on the iPad :) Hes due to have some more botox as his last lot has started to wear off now and we've been having to up his medication to keep him from getting cramp and being in discomfort, which isn't a long term option, so needs be with botox. He is also having his salivary gland injected at the same time, the thought makes me wince, but he will be asleep and i know it will help reduce the amount of saliva he produces and lower risk of choking, which is a god send when you have a child that doesn't know how to swallow and hates the suction machine. With this being done we can also stop giving tablets daily and the patches he has worn since birth to help wont be needed anymore, thank god, as they like to fall off and take a swim in the bath.
  Nursery, one word, amazing. I really couldn't ask for anymore from the nursery Frankie attends (feel free to ask any questions about it, its highly recommended) As some of you may know Frankie attended the Garth School for several months but i just didn't like it or feel comfortable sending him, as much as we were advised not to send him to a nursery all i can say is "we know best" and it was the best decision we have made. I wish he never had to leave. He has everything he needs there, from love and care, to equipment to constant entertainment and most of all all his little friends :) they all accept him the way he is and all have reacted so well to him for children so young. Their more mature than some adults i have come across since having Frankie. Its the only place he goes that i feel 100% safe leaving him and thats so, so important to me. Frankie's one to one is amazing and i couldn't ask that she did anymore for him, she knows him inside out and the relationship they have makes me feel so relaxed. Frankie may have brain damage but i know who he is happy being in the company of and she is certainly in his top three, along with his mummy and daddy. Oh and Lottie :)
  New car, this may interest me more when i can actually drive, which is coming along as fast as i can fit my lessons in, who knew driving slow was hard work, Haha. The car has been a god send for my back, making it so much easier getting him in and out and all his equipment and wheelchair fit in the boot, i can even change him in there, perfect when we are out as no changing table is long enough for an almost four year old in nappies. Frankie's car seat has arrived, i cant even express my relief and happiness about this, it took 7 long months, the price went from £700 to £2400 after they said he needed so many extras and a turntable (i shall upload photos of this Monday, with Frankie as a model once JCM have been to fit it) but after a lot of waiting and faffing its here, i did however have a small issue which seems irrelevant in the long run, but i did ask for blue and it came in red, so here is to hoping they are able to change it to blue, after all it needs to match with his new boots and feeding bag. He is a Chelsea fan!!
  New home, new baby they say; well i suppose you could say this was partly true, but the move made sense, we were coming to Spalding daily anyway and now we are all settled, we couldn't be better. The house is bigger and more open plan and getting Frankie around in his wheelchair or Triton is so much easier. New baby, another little girl, due end of November. Pregnancy is flying by and at 25 weeks i have just under 3 months till baby arrives, yes if you do the math than doesn't add up i know, but we are having a planned elective c section a little earlier than usual, less worry for me and less for Frankie, else he may have to share his birthday, haha. Looking forward to having a baby shower in November too, something new for me and great to get together with the girls. 
  Here is to the next few months being much as the last, a happy, healthy Frankie, Lottie making me smile daily the things she comes out with and a easy c section, quick stay in hospital and a healthy baby. I shall keep you all updated. Feel free to ask any questions.
P.s Nikki, this is just for you: Thank you for singing Lottie to sleep tonight, she is still fast asleep now. Xx